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Read this book if you have type 1 diabetes – or know someone who has

The Danish interview book “The fear of hypoglycaemia is always there” is now released as E-book and printed book in English. The book gives advice - that is simple and easy to comprehend - on how you live a good life with diabetes. Experiences are presented by other diabetes patients and relatives, by some of the most experienced Danish diabetes physicians and by one of the world-leading diabetes researchers, Professor Henning Beck-Nielsen.

Excerpts from the Book Buy the E-book Buy the printed book

Read about other diabetes patients’ experiences with low blood sugar

Get health professionals’ advice for diabetes patients, who cannot sense low blood sugar

Learn how to deal with the fear of low blood sugar

About the book

“The fear of hypoglycaemia is always there” contains 11 interviews with parents to children with diabetes, men and women, young and old about living with type 1 diabetes. About the problems and fears experienced, but especially about how to live with the disease. The book describes how hard it is to be dependent on others – and the enormous contribution from spouses and relatives. The book also contains contributions from diabetes physicians and a psychotherapist, who present the latest knowledge about diabetes and offer some advice about its management.

"This book is an important one. It acts as a brilliant reminder to all those who have Type 1 diabetes (and their families) that they are not alone. For healthcare professionals, it offers an invaluable level of understanding."

Review from Dr. Myuri Moorthy, SpR Diabetes and Endocrinology, University College London Hospital, in Diabetes Update Summer 2016
”If you are young and want a child, just leap into it, as we did. It’s the greatest experience life can give you.” Anne K. Ravnsgaard
His parents’ advice to other parents: "Unfortunately, you have to prepare yourselves that life will never be the same again." Alfred, 7 years old
”I had to choose between two evils. I had to keep my blood sugar low for the sake of my child, but avoid low blood sugar for my own sake. I developed an anxiety disorder and it got so bad that I had to be admitted to a psychiatric ward.” Hanne Mette Jespersen
”The difference is that she now has a pump and a sensor that help her control her blood sugar and, above all, help her avoid hypoglycaemia.” Jette Mosby
Rikke has had two car accidents due to drops in her blood sugar, but since Rikke got the pump and the sensor she has had no problems with driving. Rikke Mikkelsen
”The risk of hypoglycaemia frightened Dorte and Henning. So much, that they got into the habit of getting up to check Jesper’s blood sugar every night. ” Dorte and Henning Iversen – parents to Jesper, 17 years old
"It is the “mum things” that stress Dorte the most and make her blood sugar fluctuate.” Dorte Hovmand
Today, his eyesight is only 15-18% and he is happy to have received help with the lighting in his home. Niels Christian Brandt
Her advice to others: "Allow yourself to take a break once in a while and breathe and think that it’s really unfair that you had to be the one to get diabetes." Hanna Frederiksen
"I work hard for many, many hours at a time and I’m dependent on driving a car. The consequence is numerous readings." Henrik Hansen
The time when mistakes happen is during daily life, and especially when the career or night-life is running at full speed. In these situations, my glucose sensor is very useful and it has saved me from trouble many times." Søren Kruse Lilleøre

Watch a video with some of the diabetes patients and relatives interviewed in the book

In the video, you will meet two diabetes patients and the mother of seven-year old Alfred. They have all been interviewed in the book. You will also meet Professor Henning Beck-Nielsen from Odense University Hospital, Denmark. He is the author of “The fear of hypoglycaemia is always there” and has worked with diabetes for more than 40 years. In the book, he passes on his knowledge by giving advice that is simple and easy to comprehend.

The author of the book

Professor Henning Beck-Nielsen, DMSc

Henning Beck-Nielsen’s thoughts about optimal diabetes care have resulted in the so-called “Funen model” that makes diabetes patients capable of taking care of themselves in their everyday lives through education and support. An initiative that has shown to improve both life quality and life expectancy. Henning Beck-Nielsen’s research has led to more than 500 scientific international publications and many awards, among others the prestigious German Paul Langerhans Medal.

Read more about Henning Beck-Nielsen and his more than 40 years of research.

“The fear is always there…”
This sentence was expressed by diabetes patients and their relatives over and over again when they told me about their disease. I perfectly understand this sentence when listening to them telling me about their daily lives: Standing in a classroom and suddenly not being able to put two and two together, waking up in the emergency ward not knowing why or how they got there, teaching their young children to call 999 “if dad gets weird”.

I hope that this book, which shows the seriousness of hypoglycaemia, will be of benefit to both patients with diabetes and health professionals, relatives of patients with diabetes, decision-makers and others with an interest in the disease. I hope that others can make use of some of the solutions provided in this book and that it will help make life easier for people with hypoglycaemia.

Lastly, I wish to thank those who made it financially possible to write this book. I wish to stress that the sponsors had no impact whatsoever on the content.

Henning Beck-Nielsen